Encrusted Stent, Low Grade tumour Uterer & Kidney
My Sister was diagnosed in 2020 with High Grade Urothelial with Lamina Propria Invasion and CIS stage pT1 which was removed in Sept 2020, follow up cystoscopies were NED till December 2023 when a Low grade Non-Invasive Papillary Urothelial Carcinoma grade 1-2 TCC pTa was removed. A stent was inserted in the uterer then, and she has just had her appointment to have the stent removed ( 18/3/24) and the Dr said that the stent was encrusted and that there were now tumours in her ureter and her kidney! we have an appointment with the Dr on Monday to get the pathology report from the biopsy taken. The Dr "thinks it looks the same as the tumour he removed in December, Low Grade). He said at the hospital that he would recommend the removal of her kidney and ureter! my Sister was absolutely in shock to say the least as there had been NO mention of any problems with her ureter or kidney beforehand. He also said that her actual bladder looked really good. So I have been trying to do some research and I have seen where it has been known for cancer to seed in the ureter when a stent has been used???? so I would be very appreciate if anyone has any knowledge of this happening or have had it happen to them.
Thank you all in advance, we are just so stressed and confused at the moment.
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@fay48, This is wonderful news! I can feel your relief that the procedure went well and that the results are looking good.
Will there be any other follow-up on addditon to the 3 month kidney function and BP monitoring by her Primary care doctor? How long of a recovery/healing is anticipated?
Cystocppy each 3 months and kidney scans
Was there any intravesicle treatment recommended?
Just the mitomyicin wash after the surgery then cystoscope in 3 months.
Hi everyone a further update on my Sister, she had her 3month cystoscopy 20th December, Dr said there were a couple of small tumors 🙁 but said not to worry they look to be low grade, she is going to have another TURBT next wednesday and a Mytomycin wash, so will not really know much more until the pathology comes back from this TURBT, it is certainly a journey. Thank you all for this group and support. will keep you updated.
I hope your sister gets better. I myself going for prostate surgery to have it removed. Going to check my bladder to fo
we pray that all goes well for you
Thankyou