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Neuropathy: What works and what are scams?
Neuropathy | Last Active: 3 hours ago | Replies (603)Comment receiving replies
@pghspinupgal
No, but I have not tried to find anything to control the numbness. I personally don't believe there is anything that helps. Although I have read a few people who claim they have gotten relief. But those claims are rare. My neuropathy is what it is and I've been told it's now permanent. I don't dwell on the possibility it will prevent me from walking although that is a possibility. I have only tried Neurontin, Lyrica and various opioids. None helped the numbness but the fentanyl patch helped the pain some back when I had pain.
I feel a positive attitude helps. Why worry about something that may never happen. If I get other complications I will deal with them as they occure. According to my doctors neuropathy has already caused my ED, bowel and bladder problems along with leg weakness. I'm going to concentrate on the present not anticipate future problems.
Best of luck to you,
Jake
Replies to "@pghspinupgal No, but I have not tried to find anything to control the numbness. I personally..."
i’m trying to be positive i really am, i was a very active wife mom, and my job, now my balance is wobbly im embarrassed to go anywhere , looks like im drunk or sumthin , im in alot of pain but only take gabapentin. My PCP won’t give me anything for pain so she referred me to a pain clinic and she didn’t wanna give me any pain medicine. She wanted to put me on some sort of patch that was lasted three days buprenorphine patch or something like that.? i refused , ny copper was very low , 5 normal is 140 i get iron infusions once a year , b12 shots , idk .. im soo hopeless .. I feel like nobody will listen and I’m being medically gaslit. and being denied pain meds bcuz of the way i look .
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I am with you. The doctor told me at my last EMG there is no cure for you. I have tried several things that of course didn't wok. All this fix it stuff is crap as far as I am concerned. I do try to be more positive in my life. But one thing I notice is that if I am extremely stressed, the neuropathy spreads. It's now up to my knees and sometimes I feel loss of muscle as my leg will start to collapse. I am still using a walker and do believe I will be in a wheelchair soon. My legs feel like they are freezing and my fingers feel like they are freezing. It's difficult to type, I spill things constantly. It has affected my bladder ands bowl problems. My kids want me to go into a home, but I still have a functioning brain. I'm 75 and have had this for over 30 yrs. If you are young and it's just in your feet keep your mind active. Yes there are days when I just want to break down and cry and scream that doesn't help either. Accept the fact we all live and die. Hang on as Lon as you can.