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Hello @ddr My situation sounds a bit similar to @54pontiac - I was doing PT for knee pain, one morning I had so much stiffness and pain in BOTH thighs I cancelled my appointment and went off to Urgent Care -my concern was Lyme disease. The doctor who saw me drew blood for Lyme tests, but to this day I am annoyed that he did not do a work-up for CRP and ESR - He just murmured to me that I'd probably need a rheumatologist. When I was diagnosed with PMR I asked for referral for pool- PT. You said you are tapering down, did your pain and stiffness respond quickly to Prednisone and are you free of that morning ( I assume ) stiffness? I took a leave of absence from work and then retired 9 months into my PMR /Prednisone tapering. Exercising in the pool and walks to our pond for birding really helped.
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I already had PMR but the doctor I saw (and I) knew nothing about that. She sent me to PT for my rotator cuff, although the pain had spread by then. She did not know to check my CRP and ESR. I was sent to the rheumatologist for my osteoporosis, which is obvious in my hands. He put it all together in 5 minutes, took blood, and put me on prednisone. I did not respond immediately because it was such a low dose (10mg), but within weeks I was pain free. I am tapering down to .5 mg now and I am stiff in the morning. Ironically, the PT stretching exercises that did nothing for my PMR now help me with the stiffness. I also do weights for the bone loss from prednisone and supplements.