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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 4 days ago | Replies (434)
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@joycecamden

Hi,I was diagnosed with Arachnoiditis when I was in my 50s now I'm 71.Just this last yr a dr miss diagnosed me saying that I have a tumor inside my spinal cord. They operated and it was Arachnoiditis. They put a patch on the spinal cord to give room for the nerves all sticking together.Im not on pain meds.I take an ibuprofen when I need to.I feel lucky so for.

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laurenseavertson | @laurenseavertson | 4 days ago

U are lucky. Every case is so different. I dodged the bullet for awhile. But now have severe, unrelenting pain. Can't sit up, or get out of bed too much. Your details are harrowing, being misdiagnosed that way. Hope you continue to be pain free. I am at the point, that i need to go to ER for large dose of Dilaudid ER's here, are so over crowded & back pain is not considered an emergency, so you go to the end of the line & sit in waiting room for 6 hours, before getting seen

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