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Can anyone provide their care plan for lichen sclerosus?
Autoimmune Diseases | Last Active: 4 days ago | Replies (5)Comment receiving replies
Welcome to this group. I can understand your concerns. I've found it very helpful having a group of peers with whom to discuss issues. I was diagnosed 2 years ago. Initially I was using the clobetasol daily. I'm now on the twice a week regimen and, according to my doctor (an OB/GYN), am in remission. Before applying I soak the area to soften the skin and allow for better absorption of the ointment (not cream). I was told to use a pea-sized amount of the ointment. I spend a couple of minutes gently rubbing it in. The doctor also put me on an estrogen cream twice weekly. She was never very specific in any of her instructions to me, but I've found a lot of helpful information and assistance through the Lichen Sclerosis Support Network (LSSN). Good luck with both the LS and your urinary issues.
Replies to "Welcome to this group. I can understand your concerns. I've found it very helpful having a..."
It took my doctor 6 months of constant pain to send me to a dermtologist to get my diagnoses of lichen sclerosis. I was prescribed Dermovate Cream to apply nightly for a few weeks and thereafter given estrogen cream nightly for a couple of weeks then twice weekly to remain on as a maintenance to prevent a reoccurance. I did not have any problems for two years. Then I decided to stop the estrogen cream but the lichen sclerosis symptoms returned so i quickly started on estrogen again. i haven't had any further problems.
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@ronag @rose66 I used Clobetasol ointment daily when first diagnosed too, and now use it only when I have a flare.
@ronag You are right … Clobetasol ointment works better on me too than cream or gel for lichen sclerosis - although for oral lichen planus I prefer a gel (not cream or ointment). I use Lyderm gel for that.
By the way, I just came across this recall notice for Taro-Clobetasol:
https://www.drugs.com/fda/taro-pharmaceuticals-issues-voluntary-nationwide-recall-clobetasol-propionate-ointment-usp-0-05-60-14500.html