← Return to Living with Neuroendocrine NETS, any advice?

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@cindypat1

Hi,

My name is Cindy. I was just diagnosed with Grade 2 Stage 4 NET in my liver. From my biopsy they’re thinking it might have started in the midgut. I go to Mayo in February for more testing and to find out about any treatments. My liver mass is large, over 6 cm. The waiting is so hard. I am feeling good right now but, of course, you never know how long that will last. My husband has ALS and I need to be here to take care of him as he progresses. Everything I read online doesn’t give a good life expectancy. Helps to hear what other people are experiencing.

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Replies to "Hi, My name is Cindy. I was just diagnosed with Grade 2 Stage 4 NET in..."

Hi Cindy, As encouragement…I had a lime size tumor removed from my mid gut (terminal ileum) 11 years ago and I am still here - getting my monthly lanreotide shot every 28 days. I am stage 4, tumors in liver and mesentery but thankfully they continue to be stable. So hold onto hope that you can be there for your husband. Tim