Where are PINP and CTX bone marker tests offered.
Where are PINP and CTX bone marker tests offered? Are they available in Washington State? I am starting Evenity 12 month injections. Listened to Dr Doug on You-tube, he stressed the importance of these markers to determine when to transition to Prolia. My endocrinologist knew nothing about them. I gave her some research papers to read-she was interested. However I have been unsuccessful in finding a lab near me that offers them.
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The labs might recognize the full names for these tests.
PINP = PROCOLLAGEN TYPE I INTACT N TERMINAL
PROPEPTIDE
CTX = C TELOPEPTIDE (CTX)
I don't know what labs are around you, but I've had these tests at both Labcorp and Quest.
I have had no trouble getting these tests drawn but the P1NP can take weeks to come back!
Reclast or alendronate are both options after Evenity that you can discuss with your doctor. My doctors don't use Prolia due to rebound but some people on this forum are using it for a year or so then Reclast. Just a heads up to talk with your endo about.
The Quest Diagnostics test directory lists both CTX and P1NP as available in the northwest (WA, OR, ID). Here’s a link to search results for P1NP:
https://testdirectory.questdiagnostics.com/test/results?q=Procollagen%20Type%20I%20Intact%20N%20Terminal%20Propeptide
Labcorp offers it too. You can go an independent lab in your area or if your doctor's office does blood draws have it done there. They will then send the sample to either Quest or LabCorp, whichever they use. As someone previously stated, using the full name of the tests is useful. They are rarely requested and the labs sometimes get confused with the acronyms.
Lab Corp
Do you have to have a prescription at Lab Corp for these tests or can I just walk in and say I want them? When I asked my doctor about it they said I didn't need those tests - just keep exercising etc.. Blah Blah Blah. Not the right answer for me!
There is a thread (thank to @gently ) discussing self pay for bone marker testing in case someone doesn't have an order from her doctor(s) and/or insurance does not cover the test. The link:
https://connect.mayoclinic.org/discussion/self-pay-for-ctx-p1np/
I haven't used the jasonhealth site yet but am sure some members had. I got mine done at Quest Lab with orders from my endo or other physicians.
@ lillimere I'm using Jason Health for both ctx and p1np. The thread suggested by @mayblin has lots of info. It's the cheapest place I've found. The ctx is $50 plus $18 fee for prescription-lab draw etc. The $18 is a once a visit fee. If you had 10 tests in a visit it would still be $18. The actual blood draw takes place at a Quest site in my area. Oh, P1NP is tricky to find on Jason Health. I had to call and get help from their support folks.
My doctor told me that traditional medicare will only cover ctx once a year. If anyone knows anything different than that, like how we can get Medicare to cover it more often, please let me know. Otherwise it's worth it to me to pay myself when I want the tests done.
My situation is a good example of when you might want to do frequent bone marker testing. I'm testing monthly right now to see if Risedronate can hold my Evenity gains. I don't want to wait months to find out it's not working. I want to find out right away and change meds if so. There are studies with Risedronate that show how ctx responds to it at selected time periods. It should go down right away, like in the first couple of weeks. That's going from no meds to Risedronate not from Evenity to Risedronate but still there is data showing the ctx should go down fast. Testing ctx monthly in this case is the kind of info that is invaluable but is not what most of us are getting.
https://www.jasonhealth.com/choose-lab-location This cite will help you locate the Quest Lab closest to you. You can use your physician's requisition at any of them.