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Stem Cell Transplant Decision & Success
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Feb 13 1:37pm | Replies (19)Comment receiving replies
katgob,
Thank you very much for sharing. You are an inspiration to me. I am very lucky to have my wife, two of four daughters, and one sister who can share being my caretaker. I haven't read your entire story yet but I will.
Again, thank you for sharing. I look forward to learning more about your journey and, hopefully, supporting you as well.
Replies to "katgob, Thank you very much for sharing. You are an inspiration to me. I am very..."
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Hi @jeffhampton
You’ve already received some wonderful advice and hopefully comforting words from many here. For my husband and I this forum has been a life line in our darkest hours. We all truly understand what you are feeling when the rest of the world, for the most part, doesn’t. I think you may have read about our journey at the link Lori shared about my husband’s high risk AML and stem cell transplant on June 12, 2024. Today he is doing very well at day 212. He is 65 years young and continues to recover from the transplant, gaining strength every day. He just told me a couple weeks ago that he is starting to feel like himself again. 🙏
Because his AML involved ‘high risk’ genetic mutations, he is on monthly maintenance chemo (Azacitadine and Venetoclax). So far tolerating it pretty well. Like many others, we are grateful for each day and try not to get caught up in thoughts about the future. We have today, one at a time!
I’d like to extend an ear to your care team as well as you. If any of them or you have questions or would like insight into anything regarding the transplant journey, please reach out here.
Sending you healing thoughts.
Mary