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Stage 1, very treatable invasive lobular carcinoma
Breast Cancer | Last Active: Jan 5 3:00pm | Replies (37)Comment receiving replies
@moloney1231 That is disappointing and concerning. Does long term data exist somewhere re: lobular recurrences? I asked questions when I was diagnosed but maybe not the right ones. I would like to know 5, 10 and 20 year recurrence and survival rates. What I was told was that treatment has changed over the past 20 years. ???
Replies to "@moloney1231 That is disappointing and concerning. Does long term data exist somewhere re: lobular recurrences? I..."
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When I was first diagnosed in 2012 there was no difference in treatment for ductal vs lobular. Lobular was given chemo even though now they know it isnt effective. I have only been seeing new things for lobular in the last 5 yrs so you will probably not get the data you are looking for. But if they can’t screen for lobular I would be hesitant to do just a lumpectomy, but that is just my opinion. I obviously regret not having a mastectomy 12 yrs ago!