Hi @gigi2018. I am literally tearing up for you and please excuse if I dont recall reaching out prior due to my covid brain issues. I too am going on 4 yrs of this unbelievable journey and I hope you can find the right physical therapist who can help pacing, rebuilding muscle, with breathing techniques to assist your goals in the realistic and patient healing forward manner to prevent the agonizing setbacks that are still unexplainable to so many. You will accomplish so much with those of us here cheering you on and precious time with your loved ones in any manner possible! healing healing to you🌈