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And yes, I’m so thankful to find a community of peers. I look forward to hearing from you & others on how you are dealing with your challenges. I no longer feel so alone in this. It’s had to see friends living their lives & having a fully functioning husband who remembers & they are able to communicate with. What I miss most is being able to reminisce. I also no longer know how much he tells me I can rely on. It’s like I have to be present for everything.

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Replies to "And yes, I’m so thankful to find a community of peers. I look forward to hearing..."

@tryingtimes10
Oh my gosh. Your post was the first that I read. My husband was diagnosed with MCI in December’24. We have been married 52 years, also. I have been reading through other posts, and we are all going through basically the same thoughts, problems and hitting the same walls. I felt so alone for such a long time before I finally took the big step to convince my husband to see a neurologist. Our three grown children were not on board and made me feel even worse. I have been seeing a therapist for a few years and brought my concerns up to him and wondered to him, what if I am wrong? I doubted myself constantly. I wonder if all of you faced that, the fact that you ‘know’ your spouse, you can look backward in time and see that the ‘other’ IS different. We do deal with sadness, anger and grief. We do miss affection, tenderness, attention and the ‘knowing’ each other and being able to read reactions, privately, in fun or weird situations. Our best friend & confidante is no longer. We do have so much weight on our shoulders with no one to help us with some tough decisions about now and even worse some horrible decisions that come with time.
@kathyduggan said that she waits to announce things, I agree with that. So many times someone will bring up a certain thing and I shudder and think ‘oh! Why did you bring THAT up?’ We will never get past that!’
My husband is still pretty independent & takes very good care of himself on his own, but he is definitely not ok. I miss him so much and feel the gamut of the feelings you all feel. What a journey this is. I’m glad I’ve found a place to vent where I feel heard and felt.
Peace and love to all of you.