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Advice on a trip after having Radiation

Prostate Cancer | Last Active: 9 hours ago | Replies (20)

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@kujhawk1978

I saw where you cancelled the trip...

So, my experience is a little late in your decision making. I did SRT after experiencing BCR 28 months from a very successful surgery. It was 39 IMRT treatments to the prostate bed, no ADT.

I experienced no side effects. Same for the other two times I've done radiation.

When making decisions consider statistics, Bell Curve, average, mean....some will fall inside the Bell Curve or what I call the "normal" experience. Others will fall outside it, either experiencing definite side effects or not, I am the latter. Where you will be none of us can say, we can only relate our experience. There are statistics which will say for the population as a whole...information, but, may not be your experience!

I've also done chemotherapy once and ADT twice. While experiencing the usual side effects from those, they did not interfere with living. My wife and I travelled to Iceland, did the Ring Road, went to the coasts of Oregon and the Columbia River Valley while I was doing 12 months of Orgovyx....

The advances in the planning and delivery of radiation along with technological changes in the systems make it not our "fathers' experience."

There is also the training, education and experience of the radiation oncologist and their team that may be a factor. I've had the same radiologist for all 69, she's good.

The only constraints I faced with radiation were travel since only weekends were free but otherwise M-F you had to be physically present and the daily ritual of hydration, going to your appointment.

So, your decision, you have heard from a variety of guys on this forum and their experiences.

As to ADT, likely you have systemic PCa which may necessitate systemic therapy in conjunction with radiation.

You don't say if you've had imaging or not nor other clinical data such as pathology report which would be useful to the forum providing their thoughts.

I will say this, talk with your medical team about doublet or triplet therapy. If you and your medical team go the route of radiation discuss including the whole invoice lymph node system, not just the prostate bed.

Definitely talk with them about taking mono-therapy off the treatment menu, definitely not mainstream clinical practice.

If you have not already, find and read the NCCN guidelines for Advanced PCa, use it as a guide for discussion with your medical team.

Kevin

Kevin

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Replies to "I saw where you cancelled the trip... So, my experience is a little late in your..."

My pet scan showed cancer in the seminal vesicle is all I know at present, I have a team of the top doctors in the Boston area so I’ll get through this but as an active 78 yr old I’m not very patient