Endometrial Ultrasound findings and next step suggestions
Ten years post menopause I noticed mild vaginal bleeding and contacted my primary care physician. She ordered a pelvic and transvaginal ultrasound ( I drank 5 cups of water in 1/2 hour, waited 1/2 hour, and then had the ultrasound; no peeing allowed before the ultrasound). The results are listed below:
OVARIES: Right was normal could not see left ovary due to gas? Should I insist the left ovary be checked out with further testing.
ENDOMETRIUM: markedly thickened and measures 2.3 cm. Careful follow-up is recommended.
ENDOMETRIAL STRIPE: markedly thickened. This finding is consistent with endometrial hyperplasia or neoplasia. Careful follow-up is recommended.
What does the pathologist mean by "careful follow-up". Should I expect to be referred for a Hysteroscopic examination after I see the gynecologist in January (yes, that is the soonest I could get in and she is a Nurse Practitioner so may not do the Hysteroscope procedure).
What are the medical procedural steps I should request/expect to get a reliable diagnosis?
I have been using a vaginal estriol cream for atrophy/extreme dryness. Should I discontinue use of it while I wait for a diagnosis? My Doctor thinks it is fine to continue with it. I am thinking of cutting the dose in half just to be cautious or may find a substitute and discontinue it altogether. Research shows it does not contribute to endometrial cancer but I wonder.
Any thoughts on how I should proceed would be greatly appreciated.
Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.
This morning I heard from the hysteroscopy scheduling Nurse. They have cancelled all elective procedures which require an irrigation solution due to the Baxter Plant being off-line. I am on the list, which is probably long. My guess is sometime next year I will get an appointment. So frustrating!!
Just got a phone call from the scheduling Nurse who had previously sent an email telling me there would be a delay in scheduling me due to the shortage of irrigation fluid . To my surprise she called me this afternoon and said that a supply had arrived and I was the first person on her list!! So I got scheduled for late January, which is sooner than I expected, and I am so relieved:)
It will be an in-office hysteroscopy so I hope my pelvic bones and uterus relax enough for good results. The Nurse explained the cervical softening suppository and the pain killer that would be used. Once I had the appointment it was like a weight was lifted off of my shoulders. Guess you do not know how much something is weighing on you until it is gone.
I like revaree- been using it since having brachytherapy-can order online.
Reveree is good b/c it doesn't have any other questionable ingredients.
Bocabird and Lilacs,
Thank you for the input on the Vaginal moisturizer. Does it ever go on sale?
@beebe This is very good news that an appointment is scheduled and you were first on the list. I know what you mean about the waiting. Once appointments are scheduled then I begin to feel less anxious too.
Bad news for me. Was searching for information on my last colonoscopy and found my lab results for the pipelle biopsy.
The tumor cells demonstrate morphology consistent with endometrial
serous carcinoma. Immunohistochemistry for p53 shows diffusely
positive (aberrant) staining. p16 is also diffusely positive,
consistent with the diagnosis. Prognostic immunohistochemistry shows
weak positive staining for estrogen receptor (ER) estimated at 20%.
Progesterone receptor (PR) is negative. Her2 is 0+ (0-3+ scale).
I think this means I need a hysterectomy where they will stage the cancer and determine my fate. My Doctor must be on vacation as I have not heard from her and the lab results were posted Dec 20th, the same day as the procedure. I think I will fill out the Mayo clinic self referral information and not wait for my Doctor's referral.
@beebe This is bad news and something you don't want to discover on your own. That must have been quite a shock to you.
I read in another discussion that you saw your results on Dec 20 which was the same day as the biopsy. You haven't heard from your provider who performed the biopsy. This is inexcusable. It once happened to me over a July 4 holiday and even though my results were negative (breast biopsy) I was very upset to hear nothing back for over a week. The provider may or may not be away but someone else in that practice should have been in contact with you for next steps. On the other Discussion you wrote that you did self refer and have a phone appointment on January 6.
Will you let me know how the January 6 phone appointment goes and if and when you have appointments scheduled at Mayo?
Helen, I just read the results this morning as I was searching for information on my last colonoscopy, the providers website never notified me of new lab results being posted. It was a bit shocking to read the results for sure. If the Mayo clinic wants to schedule me too far out I will go with a local Onocologist, Dr. Joseph Buscema, who is well respected. I read that serous carcinoma spreads quickly like ovarian cancer does so I won't be waiting around if I can help it
So sorry for the news but especially how you discovered it. My oncologists have noted that only they are to release any results to the portal to prevent this from happening. Take care