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Stage 1, very treatable invasive lobular carcinoma

Breast Cancer | Last Active: Jan 5 3:00pm | Replies (37)

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@leonielaw

I had a double masectomy in April 2024 after my March 2024 diagnosis of stage 1 invasive Lobular BC. I was afraid that it would come back larger. Onco was shocked they found it via regular mammogram. They said it was 1.4 cm, but after surgery it was found to be 3.7 cm. In other words Lobular BC is a "Sneaky" cancer. I didn't want to live on pins & needles. I'm stressed enough trying to figure out How I even got BC. Was it something I did? Ate? Drank? Any answer would at clarity to my life. One thing is I have NO regrets having the bi-lateral masectomy. Just finished reconstruction & they look "normal". On meds still, glad no more mammogram.
Do the double masectomy- come out Swinging & Kicking Cancers Ass. Be Blessed my fellow sister in arms. We WILL beat cancer!!!

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Replies to "I had a double masectomy in April 2024 after my March 2024 diagnosis of stage 1..."

I'm sorry you have been going through this, and hope you are doing well. If possible, try not to stress about what you "did" to get breast cancer. I gather age and genetics are the major obvious co-factor. (And we can't control either of these). Otherwise, there are numerous things that might have an effect, but this is far from conclusive. Maybe in the future there will be a known cause. But for now, I tell myself I have to live with the uncertainty and be glad of the treatment and support I have. At least that is my New Year's resolution! Wishing you all the best.

I couldn't agree more. I was disgnosed with sneaky LBC in March, had a mastectomy in April, 28 doses of radiation after. Just finished reconstruction last week, and on we go. I feel like I lost an entire year with doctor visits, treatments, surgeries and worry, but now life begins anew. I'm hanging onto all the good things I got from this experience (appreciating life, friends and family in an entirely new way) and grateful I threw all the ammo medically available at this sneaky beast. Oh no you don't, LBC. Not in THIS body!

Have decided to go with a lumpectomy and radiation. I hope I have made the right choice. It was a very hard decision. I am also waiting on a BRCA testing, if it comes up positive my surgery choice will change.