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Lynch Syndrome & Colon Cancer

Colorectal Cancer | Last Active: Feb 3 10:26am | Replies (27)

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@alake

Pretty sure my results are saying this. No one can follow up with me because it’s a holiday. Genetic meeting Thursday. Feel like this is worse than getting rectal cancer that I was working on beating here in the future. Chemo to start momentarily after insurance approves. 45yr old

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Replies to "Pretty sure my results are saying this. No one can follow up with me because it’s..."

I was diagnosed with Lynch Syndrome 26 years ago. A colonoscopy at that time when cancerous polyps were removed precipitated the need for genetic testing since numerous paternal relatives had been diagnosed by the Mayo Clinic. Since then I have had two partial collectomys and finally chemo and radiation and APR surgery two years ago. The Mayo has great support for this syndrome and vigilance is crucial. I consider myself very fortunate and hope to remain cancer free. I am 75 and have a good quality of life despite all the treatment. Best of luck to you!

My brother and I both diagnosed with Lynch. My brother passed away in 2023 at 78 from kidney cancer. All first cousins on my father's side except one had the mutated gene. Last year I was diagnosed with colon cancer (age 76) and had a colectomy. Fortunately my lymph nodes were clean so no chemo, but on a short leash for continued monitoring. Also, I prostate cancer dx in 2007 but so far so good after prostatectomy followed by radiation and luprone injections.

@alake, I hope you saw the helpful posts from @geno77 and @patsyh. You may also be interested in these discussions related to Lynch syndrome:
- https://connect.mayoclinic.org/search/discussions/?search=lynch%20syndrome

How did your meeting go with the genetic counsellor? Do you have Lynch syndrome? Did you start chemo?

Hi,

I found out 5 years ago I have the Lynch gene. I started with brain cancer in my 30s (now remission), and currently have colon rectal cancer (I'll be 53 soon).