Jeff.
I am katgob. I was diagnosed with MDS last Oct 2nd. Because i had BRCA2 and Breast Cancer 2 years ago, I was offered a "watch and wait" or a transplant. It only took me a few minutes as i sat there and pondered what the DR said and my health already.
The DR. said MDS is like this, if you had 6 Kathy's, 2-3 of you without treatment may have 5 plus years. The other 2-3 will have AML. Not sure how long it will take but this is how it happens. I said to him, let's do it. He said he would enter me into Be a Match. With genetic mutations in my siblings as well, I needed a donor. There were a number of matches found within a few months and a perfect match was selected in early January. Paperwork needed to be done on our end and over in Europe where my 26-year-old donor came from. In late Feb early march, it was a go. Now they needed to make sure he was available. My biggest concern came knowing i needed a caregiver. I lived alone and none of my 3 siblings could help me. A miracle happened as a good friend put out a text to a bunch of sisters. It was only a few hours later she called me and said i could stay at her house. April 3rd started my conditioning. Home every night after that chemo. Then in the hospital Day 5, by Day 9 i had my transplant.
Lots more but it is written in my story BMT Lori mentioned. I am day 266 after transplant. I feel blessed.