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Any one with Neuroendocrine tumors getting the shot once a month?

Neuroendocrine Tumors (NETs) | Last Active: Jan 2 10:24am | Replies (18)
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@tgsenn70

My husband was diagnosed with a NET a year ago. His doctor has only prescribed sandostatin (hope I am spelling that correctly). Never even really mentioned radiation. I know it does depend on the individual’s specific circumstances, but I am just wondering if maybe we should inquire about it since that seems to be pretty common in others who have the same diagnosis. Can you share any additional information that might help us?

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Replies to "My husband was diagnosed with a NET a year ago. His doctor has only prescribed sandostatin..."
Sherry | @bluebelle | Jan 1 9:10am

Hi! I’m so sorry to hear about your husband’s diagnosis. I believe in asking as many questions as possible and finding out as much as you can about this horrible disease. I think in order to receive Lutathera there are some criteria that the tumors/treatments must meet and what stage the cancer is at. I am stage 4 and the cancer has metastasized to my liver so the Octreotide wasn’t working alone. I would definitely ask his oncologist about this newer treatment option. Until then, best wishes and prayers to you both for a healthy, healing new year ahead!

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