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Stem Cell Transplant Decision & Success

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 days ago | Replies (11)
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@jeffhampton

Lori,

Thank you very much for the reply and all of the information. I am being treated at Barnes-Jewish Hospital in St. Louis, MO and the recovery will be a combination of the hospital and home for the first 100 days. I will be in the hospital until my blood counts recover then return home with follow appointments to the doctor every week.

I am grateful to have found this group. The most difficult part of leukemia is going through it alone. No matter what, if you have cancer it can get very lonely and it has been difficult for me to find a support group.

Thank you again for the reply and all of the information.

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Lori, Volunteer Mentor | @loribmt | Dec 31, 2024

I know what you mean about going through this journey alone. When I had my AML/BMT I had no one to talk to about this…no mentors. So my husband and I pretty much flew by the seat of our pants through the entire odyssey.
I had great medical teams back home and at Mayo who were very supportive and informational. But my greatest boost of confidence came at about 1.5 months after my transplant when I met 2 people who gave me hope for the future. I learned the value of having a mentor.

So that’s why I’m here, along with the rest of our BMT posse to offer hope and encouragement to anyone having a transplant or facing a blood cancer. It can be so helpful to someone who has walked the walk.

So don’t hesitate to ask us anything. We’ll give you straight answers! ☺️. Wishing you a Happy New Year!

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