Welcome to the group! We are not as much fun as a pickle ball team, but I hope you will find the support and encouragement you are seeking as you face this challenging journey.
I was diagnosed with a high risk AML in April, 2013 at the age of 59. My oncologist told me that my best chance for durable remission was induction chemo, high dose chemo, and transplant. My 5 siblings were all tested, but only one sister was a match. It is a daunting treatment to face, but I knew that with the strength of my faith, family, and friends I could do it. And here I am, almost 12 years later and still in remission.
Navigation of the medical system is a challenging, especially if you have a serious illness like leukemia. If you feel like you are not well informed or supported by your team, seek another opinion. The transplant team are the experts that will guide you through the challenges ahead and you need to be onboard 100% with them. Ask questions, knowledge is power.
If you are a person of faith, lean into those values and beliefs. Surround yourself with people who will be present and committed to supporting you (like us)! This experience may test some of your relationships, some people are afraid to get too close, as if this might happen to them.
And if you decide to proceed, take a deep breath, and be all in. You will find strength and resilience you never knew you had.
Please know you will be lifted up in thought and prayer.