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Replies to "@pirone27 I have had kidney disease for decades, and the formal diagnosis was in 2015. Since..."
Kidney & Bladder | Last Active: 1 day ago | Replies (23)
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@pirone27 I have had kidney disease for decades, and the formal diagnosis was in 2015. Since 1986 I have had high protein levels in my urine. At that time and for many years, it was attributed to Systemic Lupus, not kidney disease. Yes, sometimes bubbly, sometimes foamy, but I never truly considered whether bubbles or foam was a factor.
May I gently suggest: don't dwell on the worst case scenario possible. It can drive you down a rabbit hole if you go to the computer and Dr. Google, stress you out [certainly not needed!] and lead you to information not applicable to you.
Ginger
Replies to "@pirone27 I have had kidney disease for decades, and the formal diagnosis was in 2015. Since..."
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Hello. I recently had a radical nephrectomy due to a large beginning cyst. My egfr went from pre op 89 to post 44 and a month later to 38. I have lupus as well. I’m concerned this is all due to my lupus but really don’t know. I have an appt with nephrologist in Feb.
can you tell me a little more about your experience with your lupus and ckd? I’m getting very anxious as my gp immediately said dialysis. I feel like there has to be something to get this one kidney stabilized other than immediate dialysis.
Would love to hear your thoughts. I know this stress is adding negative effects on my body.
Thanks in advance.