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Precursor symptoms to PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Jan 26 7:54am | Replies (115)
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@sharon44r

I read that if you get the same pmr symptoms, it could be a flare, which could mean your pmr is still active.. Tapering symptoms I read are usually different. When I have trouble lifting arms when tapering I usually up my dose for a bit.
It’s so hard for me to get to 6mg, best when you get to 10mg to stay on it for a month, then try to lower 1mg at a time for a
Month. Maybe you won’t have the same issue I have. I don’t feel the tapering was an adrenaline issue.
I thought I had GCA , but found out it was prednisone induced cataracts, it happened pretty fast.
I can’t imagine how scared you were.
Discovering I had breast cancer created a flare of the PMR.
Stress can be big culprit.
I wish you the best🙏

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Replies to "I read that if you get the same pmr symptoms, it could be a flare, which..."
jeff97 | @jeff97 | Dec 31, 2024

I don't have experience below 10 mg, but have you tried reducing by a half mg per month? I've seen that recommended when you get in the low dosage range.

One thing I have to my advantage is taking Actemra along with prednisone for the GCA. It helps prevent flares, and helps in tapering faster.

That's too bad the prednisone triggered cataracts for you. I have normal age-related cataracts, but I see an ophthalmologist regularly to make sure they're not getting worse, and also that I don't have glaucoma from the prednisone. So far so good.

Thanks for the good wishes. I wish you well too with the problems you're facing.

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