Any feedback on Lyrica for PN would be appreciated

Posted by mayaduggal @mayaduggal, Dec 15, 2024

Had double lumbar fusion 3 years back. Resulting in PN in both my feet. Any suggestions regarding Lyrica or gabapentine

Interested in more discussions like this? Go to the Neuropathy Support Group.

I was on Gababentin 100 mg.po/TID for small fiber neuropathy in my feet for three years till I found Sanexas treatment...which works great along with some other life style changes...
Me thinking of getting a Sanexas machine at my own house and treat my self X3/week, plus B complex vitamins special blend for neuropathy...

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I’ve had nine years of PN in my legs and hands. When the nerves in my feet were dying due to chemo I started and then switched from gabapentin into Lyrica 10 mg very low dose and cleared some and then all of my pain immediately. But as two other people mention I had dark thoughts and even threw a punch the first day I took it (but I was playing pick up basketball and somebody doubted my defensive effort ) so I got off everything and I’ve taken nothing for pain since.

Here are two things that really help me a lot. Walking about 7 to 8000 steps a day in good new balance shoes. weightlifting, especially leg presses that really pushes the blood through the legs helps immensely as well.

I also found somebody here quoted a Cleveland clinic study recommended PQQ and CoQ10. I’m taking the double Wood PQQ and CoQ10and after about a week the progression of PN in my hands and legs seem to stop completely.

Recently, I started taking a liquid B complex from double wood and found that my loose bowel problems disappeared as well as giving me about 30% more energy and clarity all day.

I think a combination of chemotherapy and Moderna Covid shots have caused my immune system to be degraded.

I think the B complex liquid from double wood is rebuilding my immune system.

I’m thinking of starting a website that puts together supplements, shoes, bathroom safety rails, self-help chat and research links with a good search tool built-in. I would like some feedback if anyone here would be interested in testing such a website.

Any suggestions people have for a website? I’ve had some people mention more esoteric things for health and well-being, which I’m not a fan of, but would consider if people think it’s worthwhile.

Thank you.

Pablo MM

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@felicelinda

Look into Calmare Scrambler Therapy. It has helped many people with neuropathy…..

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What is that

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Calmare Scrambler Therapy looks at first like a tens unit, but goes deeper into the nerves leading from the location of your pain up to your brain. It “scrambles” the nerves so that by the time it reaches your brain, it tricks your brain into not feeling pain. It’s a non-invasive treatment. It’s a series of 10 one hour sessions. 70-80% of people suffering from neuropathy or complex pin syndrome are helped,greatly resolving their pain. Unfortunately the pain usually returns in 6-12 months. Then you go in for booster treatments of 3 sessions which returns your brain into not recognizing the pain. Unfortunately it isn’t approved by health insurance although the procedure is FDA approved and used by Johns Hopkins Hospital, the Mayo Clinic, and there are some doctors and chiropractors throughout our country and Europe. If you look up Scrambler Therapy, it will be explained better than I can explain it. I want my husband to try it, but at this time he says he can’t endure the one hour ride back and forth every day for ten days. But I will get him to do it since the meds he’s been taking has not helped. Good luck to you.

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