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Oral Lichen Planus

Autoimmune Diseases | Last Active: 6 days ago | Replies (31)

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@marymaryoregon

Also, I had to look up Duke’s mouthwash (similar to Magic mouthwash as I suspected) and it is not not not a potent steroid. It’s contains a super weenie steroid. You can only get stronger steroids from what you’ve been treated with so far. It’s also got Benadryl and an antifungal in it to prevent oral thrush (candidiasis), but with that weenie of a steroid, do you really need it? Joking! Joking! If your pharmacy is going to all the hassle of compounding this for you anyway, can they swap out the type of steroid? Obviously with a prescription.

I’m using liquid dexamethasone right now - like what a kid would be given who can’t swallow pills. And the fake berry flavor and red dye is… not my favorite. It was doing fine for the last 9 months or so, but this last flare it really didn’t control anything and I was increasing in inflammation and getting daily small ulcers despite using the dexamethasone (I only use as needed). So, I’m going to go talk about: do I need to be dosing it more than 2 times a day as my prior provider wrote for (probably from what I’ve read) versus using a different steroid altogether.

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Thanks for your suggestion about swapping out the steroid for a stronger one. Appreciate your responses.