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@dadcue

I'm so happy to read these words of "encouragement" to taper off Prednisone.

It was the words to "take more Prednisone" whenever I had pain that wasn't working for me. It was easy for me to take more Prednisone so I didn't need any help with that part of it.

It was tapering off Prednisone that was extremely difficult and I needed a lot of encouragement for a very long time.

Why were you on prednisone for 6 years?

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Replies to "I'm so happy to read these words of "encouragement" to taper off Prednisone. It was the..."

@dadcue hi, why was I on prednisone for for so long? I got an autoimmune disease that nobody knew about. It caused lesions on my brain. The high doses of prednisone helped me to wake up and be a person again. I had lost so much in the 10 months before I was diagnosed. I could barely walk, had trouble eating, couldn’’t think straight. I ended up in rehab while i re—learned everything. I was discharged on 20mg of prednisone. Every time the doctors tried to lower the prednisone , all the lesions came back. I was really lucky. The only doctor who knew what was going on, worked at UCH in Denver, only 1 hour from me. Now she has me on rituxan every 6 months and Myfortic (works like prednisone but has none of the side effects. I’m doing well. It’s been a difficult 6 years, but worth it!