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Interesting case of new lesions, pain, but decreasing CA19-9
Pancreatic Cancer | Last Active: Dec 31, 2024 | Replies (33)Comment receiving replies
We changed oncologist once. The old oncologist gave us a textbook answer via WhatsApp and I never forgave him for that. Our new oncologist is a cup-half-empty sort of person which is extremely traumatic for us (me especially) but she is very competent, she cares and she replies to my texts generally within 10 mins save for once when she was on a flight back. And, when it is important, she texts to say she will call me to chat. Every time she sees my husband, she asks about his mental well-being. Bottomline, she cares deeply about her patient (my husband) and I get some caring from her because I am my husband's caregiver. Not asking you to change oncologists but giving a yardstick to measure the performance of yours.
Again, I am so happy that it is an inflammation. I have prayed for you.
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I’m so glad you found an oncologist you like and that cares about your husband and you as his efficient caregiver!
Your thoughts to change oncologist is very reasonable. I did last year from Hoag based on the nurse practitioner who said I just panicking about my rising tumor marker when it took 1 month for me to figure I needed an MRI that might provide the imaging consistent with a rising tumor marker that a CT couldn’t show. After this positive results (medically) I got an endoscopy and biopsy and then changed to UCLA because it’s listed as Center of Excellence, but I’m sorry I don’t believe it is based on my experience this year. My City of Hope (not listed as Center of Excellence) radiation oncologist is excellent and referred me to a GI oncologist at City of Hope and I made an appointment today for next month to meet him. Hopefully, he’ll pass my litmus test for so someone I would like to continue care with.
Thank you @joiedevivre for your kind regards; I’ll be adding you to my rosary prayers!!