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Interesting case of new lesions, pain, but decreasing CA19-9
Pancreatic Cancer | Last Active: Dec 31, 2024 | Replies (33)Comment receiving replies
Thank you!! Did you know I was told last Monday when I made appt for chemo after my CT scan that the scheduler called me back 5 mins after she made the appt and cancelled it as she said the nurse practitioner said the the chemo wasn’t working anymore based on the reading of my CT by the Hoag radiologist that I had a large metastasis in my liver!!!
I’m looking for a new oncologist based on that. My oncologist who is at UCLA never even responded to my phone calls or my chart messages.
By the way I love your posts; and you’re right a positive is a good part of it!!
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We changed oncologist once. The old oncologist gave us a textbook answer via WhatsApp and I never forgave him for that. Our new oncologist is a cup-half-empty sort of person which is extremely traumatic for us (me especially) but she is very competent, she cares and she replies to my texts generally within 10 mins save for once when she was on a flight back. And, when it is important, she texts to say she will call me to chat. Every time she sees my husband, she asks about his mental well-being. Bottomline, she cares deeply about her patient (my husband) and I get some caring from her because I am my husband's caregiver. Not asking you to change oncologists but giving a yardstick to measure the performance of yours.
Again, I am so happy that it is an inflammation. I have prayed for you.