← Return to At home dialysis - peritoneal: Things to consider

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@ldrlaw

I so appreciate your comments. I’m a chronic kidney disease. Patient also and may have to face dialysis in a couple of years. In thinking about that, I’ve already decided that I don’t want to have a home machine because I’m just not good with electronics. Chuck didn’t even really consider doing it manually but he’s an electrical engineer so wasn’t daunted by operating the machine the way I would be. If I had a problem with the machine, I’d probably panic and start pushing every button. there is.
Re the boxes, thanks for the good suggestions.
Because he has other medical issues we’re going to be looking at equipment that will send his readings right to our doctor, including weight, blood pressure, pulse and oxygen saturation. Chuck finally got a Libre continuous glucose monitor and those figures can be pulled up as well. The monitor has been helpful and is a good reminder for him to watch what he eats.
I owned a small group home for the frail elderly for many years so although I don’t have any nursing background, I have familiarity with a lot of caregiving aspects, which I’m very thankful for. Still, at pushing 80, it’s a lot to deal with. Support from a group like this helps. Thank you for all that you do.

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Replies to "I so appreciate your comments. I’m a chronic kidney disease. Patient also and may have to..."

@ldrlaw My husband used a machine for the 5.5 years he was on dialysis before his transplant. Like your hubby he is techy-minded and configured different things. His machine automatically sent info into his dialysis center and doctor. I bet these days there are the new-fangled gadgets that will let the infor be passed along. I do log into my Fresenius account each day and send along my information on the iPad they supplied me.

I had to laugh when I read about panicking if a machine failed! That's what I would probably do, too!

One of the best decisions ever made for this situation: no matter who you speak to, do it with kindness. So many of the patients are frustrated, or confused, or stressed. By showing empathy for those we need to talk to from DaVita/Fresenius/Baxter, thanking them for their time, joking a bit if the conversation warrants it, we become someone that are happy to deal with. You can hear the relief and smile in their voices.
Ginger