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How do you cope with Mixed Connective Tissue Disease (MCTD)?
Autoimmune Diseases | Last Active: 6 days ago | Replies (121)Comment receiving replies
Hello. I am nearing an official diagnosis. I’ve tested positive for MCTD twice and have a laundry list of symptoms spanning the last 30 years and they are increasing in frequency and intensity. I received my brain MRI results last week with some troubling news. I have Mesial Lobe Sclerosis (but I don’t have high BP, high cholesterol or diabetes and I don’t have epilepsy) and Microvasular Ischemia. Do any of you have those impacts in your brain? If so, how are you being treated to slow the effects down?
I also have two parotid gland tumors. Has anyone dealt with that? Thank you so much for your input. I appreciate it.
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How did you get them to give you an MRI? I’ve been asking for one but they haven’t yet felt the need to do one. I was diagnosed with mctd in Sept but have been having brain fog and fatigue for years now and Ive been on hormone replacement therapy so I don’t think it’s related to perimenopause,