Thank you 🙏 for responding. However, please consult with Dr.Kumar and Dr. Marsh at Mayo Clinic Minnesota. They will confirm, there’s no cure for SS. I am so very thankful and grateful for the operation to stop the bleeding in my dura 2017. The operation does not stop the progression of SS, it does however slow it down. I was told that if I did not have the operation, because of the progressive nature of SS, that soon I would be completely deaf, unable able to get out of my bed to go to the bathroom.” Please see Clinic/SteveGrinstead. Just a few corrections. The operation was 8 hours not 4, and I never went back to Minnesota for follow up. SS is extremely rare. If I can be of help with others with SS, I hope and pray that I can be able to do so. Also, it helps me to help others.

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