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I am told that I also have a leak and they will keep an eye on it. I have an appointemnt with a neurologist on Jan 13 25. I am anxious to find out about this what causes dura leak? Since you went through with this, tell me what kind of questions I should ask. Also, I am not good with abreviations, what is TBI and CNS.
I have dizziness seems like every December or January is this a coinsidence. They also told me I might have inflamation of the nerves in the ear. Christals is ruled out since I do not feel the room spinning. My problem is getting up in the morning and having no balance. And sometimes when I turn position in bed I feel like I am falling in a black abyss, they are calling that BPP... something. This year when it happened I also had nosia and vomiting and blood pressure went up.
You mentioned Mayo fixed the leak can you eloberate on that. How was the surgery?
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Thank you 🙏 for responding. However, please consult with Dr.Kumar and Dr. Marsh at Mayo Clinic Minnesota. They will confirm, there’s no cure for SS. I am so very thankful and grateful for the operation to stop the bleeding in my dura 2017. The operation does not stop the progression of SS, it does however slow it down. I was told that if I did not have the operation, because of the progressive nature of SS, that soon I would be completely deaf, unable able to get out of my bed to go to the bathroom.” Please see Clinic/SteveGrinstead. Just a few corrections. The operation was 8 hours not 4, and I never went back to Minnesota for follow up. SS is extremely rare. If I can be of help with others with SS, I hope and pray that I can be able to do so. Also, it helps me to help others.
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