← Return to How can I find a MD who will acknowledge long covid?

Discussion
Comment receiving replies
@armalone

Hi! I totally understand this! I’m 3 yrs in since I had Covid in Jan 2022! I stayed so stressed with bills piling and getting nothing from it. I have so many things wrong that I’m a totally different person than I was 3 yrs ago. I’m just now today about to start over w new doctors in a new state. I’m so anxious about seeing a different doctor since my doctor knew me before I got Covid and had heard and seen everything. He has done more for me to help my symptoms than any specialist or big clinics but still I continue to add to my list of weird and unexplained issues and full body constant neuropathy, I’ve lost all the muscle in my body, my legs give out on me, I drop everything, my vision has oddly changed and my mind feels it’s about gone. I can’t remember what happened yesterday or sometimes 5 min ago, like it never happened. I’m having more and more time lapse in each day. I’ve been in a bath for 5 hrs at times thinking it had only been a hour. I can’t remember if I did something or just thought about doing it. I’ve had times I have “whited out, like black out” and luckily my boyfriend seen it before I did to sit me down. My family and friends left me not believing things I tried telling them. My siblings actually told me it’s a burden to take care of someone else when you have your own life to live and needless to say they have nothing to do with me. I’m 47 and just had left a marriage after 24 yrs before I got Covid. I got “1” good year with family and friends and not one friend or caring family, not even my daughter that’s been turn against me in site. I even explain in many tears how cared I am and wanted to just not wake up and still nobody cared and moved on without me. So now a totally unexplainable shattered heart adds to my totally weak and distressed body and mind. Life is lonely and terrible and not worth the hurt, the way people make me feel, and barely being able to leave the house. On my worse days people I encounter in a state that I don’t know not one person, look and treat me like I’m slow or mentally handicapped because sometimes my words aren’t right or I can’t get the answer out, I have a type of silent seizures, or that’s what my doctor is thinking it is, some days I have to walk with a cane, though I try not to because I think I look silly being so young and people stare at me. My tailbone is in constant pain. It’s the filling as if you fell on it and a lot of people know that feeling, but it don’t go away. Last time goes on the pain of my spine gets worse also with my hips and my legs and if I’m going down, there’s not much notice beforehand my left leg just gives out in my right leg. Seems to forget how to step forward. I got to the chiropractor all the time for her to align my body in every time it’s all out of whack. Just made a new house with my friend that came to get me and brought me here so I wasn’t alone. I can’t even do much to help. If I clean a window, I will greatly pay for it for you a few days a few weeks I never know. Life is terrible.

Jump to this post


Replies to "Hi! I totally understand this! I’m 3 yrs in since I had Covid in Jan 2022!..."

I am so sorry that you're suffering so much. I am older than you are at 59, but I too, feel the person I was before covid in 2020 is gone. It's a very lonely feeling. I have not gotten much help, aside from trying nicotine gum when I could not tolerate nicotine patches and that did help. However serious issues remain for which there is no cure. Just letting you know you are not alone and that you are of value even if you are not able to do the things you used to do. I hope your new doctor can help.

I'm so sorry you are going through this. At 60, I too have lost my previous life. I used to be super busy: taking care of others, singing and being active in church, leading a writers group, writing a book, gardening, hiking - oh how I loved hiking. Now it is challenging for me to even write a post here or write an email. I can't even walk around the block some days. But your situation made me want to try and let you know that you are not alone. I too sometimes think I would just like to leave this life. Today is better emotionally though, thankfully. Sending long hugs.