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Thank you yes it scares people I refused meds for osteoporosis for years because I thought it was poison and now I had 3 compound fractures in my spine. Now I just got my first Priola shot but was afraid of medication all along. Wish I did it sooner,!!!
Replies to "Thank you yes it scares people I refused meds for osteoporosis for years because I thought..."
You are so brave to be here saying your truth. Thank you. I agree that when you read everybody’s stories of how horrible these drugs are, it can scare you off. The pain of a few collapsed vertebrae can remind us that this is a risk AND benefit choice. I am so glad you are getting some medicine for your bones now.
The Mayo doctors who help my husband who also has multiple collapsed vertebrae give him a prescription for a lidocaine patch that goes directly on the back and it really, really made a difference in his pain. They sell an over the counter variety but they aren’t quite as strong and really expensive to use one every 24 hours. The prescription co-pay is only a few dollars for a month of patches.
How are you managing with the fractures? Did you have any problems with your first prolia?
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@mlaura1 if you have three spinal fractures I hope you can get a second opinion on treatment. I have several fractures and my doctor said he would never use Prolia. My doctors (2) have said that a bone building drug like Tymlos,Forteo or Evenity is needed in this situation. I am just another patient and repeating what I have been told. I hope you can discuss with a medical professional.
Some on this forum have described the "Prolia trap" due to rebound when it is stopped (loss of bone density, dramatic rise in fracture risk) and the only drug that manages that is Reclast. If you have had only one Prolia, then, according to Keith McCormick, author of "Great Bones" (please get that book!) you might be able to manage with Fosamax. Or even Evenity, depending on research and your doctor. You can research Prolia rebound.
The other point that is often made here and by my doctors is that Prolia (and Reclast) can reduce the effectiveness of the bone builders.
Maybe you have a special situation that accounts for this recommendation of Prolia. My doctors don't use it at all except for in situations where nothing else is possible.