Tooth pain and Neuropathy

Posted by jayneedbj @jayneedbj, Jul 3, 2021

Every evening my front teeth, top and bottom, become very sensitive, like a toothache. Within a few hours my feet begin tingling, throbbing-classic neuropathy pain.
Could this be related? I have my first set of appointments at Mayo next week for this, and other pain issues. I am really hoping for answers.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@spicegirl3

Thank you, Jennifer for providing the link and reaching out. Is there a practitioner that I can seek out in my area that could provide some help with my issues? I also suffer with tinnitus, too!

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Me too I'm going in for a auditory exam and a CT scan. My right ear is much less than my left ear Primary care said that's an indication of nerve problem. He said could be a cyst pressing on a nerve somewhere causing both symptoms. But I've had nerve issues for about 10 years or more with neck and back so it's hard to tell. I'll post if anything happens after the exam. Good luck to you hope we find relief.

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@spicegirl3

Jan64, what did you find out?
I don't think my teeth /facial pain have anything to do with a tooth issue as I have had numerous scans and images done over the years, only to be told they can find nothing wrong. A year later in 2007, I developed neuropathy in my feet and in 2023, I developed neuropathy in my hands. I can't hold my cell phone or touch the mouse on my lap top because my hands react to the EMF coming off these devices. It's so strange! I know I have Epstein Barr and Lyme that is in remission and I think I have some kind of nerve damage, but from what- I'm not sure.

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I do seem to be experiencing an unusual spike in tooth pain/nerve and root canals. However, in my case, they seem to link it (as well as tinnitus) to neck radiation I had. I understand radiation and bone connection, but not nerve pain; when I ask doctors and dentists if there could be a neuropathy connection with my dental nerves, it has always been that they don’t know enough about neuropathy 😢

I find your comment about “strange” EMF affecting your hands when using your mouse/computer very interesting. I have experienced “strange” and medically unexplained reaction in my legs when sitting on metal stools or chairs in eating establishments, often against tall counters that I’m sure have electric current running through them. Some have metal tubes around the bottom for footrests. Several times I’ve tried to stand only to find my legs to seem paralyzed, once coming close to having to call an ambulance to transport me because I was immobile and pretty much dragged myself with my walker to the bathroom so I could work it out (and grateful I’ve been able to so far). It takes time and a lot of shaking and stretching to get the feeling and movement back in my legs. Once it took a full hour to get my legs back to my normal numbness & tingling level. I’ve always felt it was EMF reaction with my Neuropathy, but I couldn’t get doctors interested or able in trying to see if it was anything to do with my neuropathy. So I just avoid the seats as much as I possibly can, and if I feel there’s no choice or suspect my legs are near too much EMF, I move and shake my legs the entire time and that has seemed to help. Strange, I know, but it’s not my normal PN numbness and tingling - I know it has to have something to do with EMF’s.

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@spicegirl3

Jan64, what did you find out?
I don't think my teeth /facial pain have anything to do with a tooth issue as I have had numerous scans and images done over the years, only to be told they can find nothing wrong. A year later in 2007, I developed neuropathy in my feet and in 2023, I developed neuropathy in my hands. I can't hold my cell phone or touch the mouse on my lap top because my hands react to the EMF coming off these devices. It's so strange! I know I have Epstein Barr and Lyme that is in remission and I think I have some kind of nerve damage, but from what- I'm not sure.

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My dentist took x-rays, but he could not find anything wrong. The pain disappeared. I ignored severe pain a few years ago thinking it was just stress related because I tend to clench my jaw, but it really was a cracked back molar which caused me to lose that tooth (vertical crack). My gum graft for implant did not work. Now, I wear a night guard to prevent damaging my teeth in my sleep. I have severe small fiber neuropathy. I am still trying to find the cause. My neuropathy is in hands, arms, feet, legs, and spine. It all happened in about 8 weeks. I could not hold my cell phone very long until I started higher dose of gabapentin. I was tested for Lyme disease (western blot).

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This possible connection of getting toothaches off & on with PN is interesting;
I’m glad that I came across it! I’ve had PN for about 25 years & just during
this past year I have been experiencing occasional toothaches that several
dentists have not been able to figure out. And there doesn’t appear to be
any clinical reason for root canals!
I also just recently saw on the internet where frostbite can cause PN years
later! I have PN of unknown etiology & have never been able to think of a
thing that could have caused it until I saw the latter. I suffered some degree
of frostbite in my feet skiing years ago…..incredible pain & skin turned
white! I never know what to believe on the internet but I can’t get through
to my neurologist (or any other doctor for that matter!) to even ask!!
Has anyone ever heard of this possible cause for PN??
Lastly, I developed RLS from this PN I believe, which is pure torture! Has
anyone ever tried Seratame capsules for that or is this just a money maker
that I came across on the internet?

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@nan25

This possible connection of getting toothaches off & on with PN is interesting;
I’m glad that I came across it! I’ve had PN for about 25 years & just during
this past year I have been experiencing occasional toothaches that several
dentists have not been able to figure out. And there doesn’t appear to be
any clinical reason for root canals!
I also just recently saw on the internet where frostbite can cause PN years
later! I have PN of unknown etiology & have never been able to think of a
thing that could have caused it until I saw the latter. I suffered some degree
of frostbite in my feet skiing years ago…..incredible pain & skin turned
white! I never know what to believe on the internet but I can’t get through
to my neurologist (or any other doctor for that matter!) to even ask!!
Has anyone ever heard of this possible cause for PN??
Lastly, I developed RLS from this PN I believe, which is pure torture! Has
anyone ever tried Seratame capsules for that or is this just a money maker
that I came across on the internet?

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Hello @nan25, Welcome to Connect. I had not heard of frostbite causing neuropathy but it does make sense. Here are a couple of research papers on the topic.

-- Long-Term Sequelae of Frostbite—A Scoping Review: https://pmc.ncbi.nlm.nih.gov/articles/PMC8465633/
-- Frostbite secondary to antimycobacterial-induced peripheral neuropathy: a case report
https://pmc.ncbi.nlm.nih.gov/articles/PMC11101997/
You might also be interested in some of the other Connect discussions on RLS. Here's a search link that lists the discussions - https://connect.mayoclinic.org/search/discussions/?search=RLS.

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