Whoa! You’ve been through so much and are very knowledgeable about your problems. Good luck finding physicians who will work with you.
I believe they all want cut and dried patients who do not know too much. I also value the physical therapy people the most- they listen and really understand our bodies.
Best wishes.

* May want to try cannabis edibles for your nighttime relief. Tylenol is not an anti inflammatory- if you can use NSAIDs you may find better relief. Non steroidal anti inflammatories.