1. < Neuroendocrine Tumors (NETs)

I recently learned of histotripsy treatment for metastatic NETs

Posted by splendrous @splendrous, Dec 15, 2024

Below are links with additional information.
https://l.smartnews.com/p-15eSVMB/JS1UQ5

Histotripsy treatment, FDA-approved therapy that kills cancer using sound and water, led by team at Providence Mission Hospital | abc7.com
https://abc7.com/amp/post/histotripsy-treatment-fda-approved-therapy-kills-cancer-using-sound-water-led-team-providence-mission-hospital/15648669/
Below google search with additional info on optimum size and number of tumors to be treated.
https://www.google.com/search?q=Histotripsy+treatmen+effective+for+neuroendocrine+metastatis+liver+cancer&rlz=1C1UEAD_enUS1116US1116&oq=Histotripsy+treatmen+effective+for+neuroendocrine+metastatis+liver+cancer&gs_lcrp=EgZjaHJvbWUyBggAEEUYOTIHCAEQIRiPAjIHCAIQIRiPAtIBCTE2NTI1ajBqN6gCALACAA&sourceid=chrome&ie=UTF-8

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

vinnie694 | @vinnie694 | Dec 20, 2024
In reply to @gesmone1 "My liver had so many tumors that they were not counted. After 4 treatments of Lutathera,..." + (show)
@gesmone1

My liver had so many tumors that they were not counted. After 4 treatments of Lutathera, as the doctor said your liver is clear. There are still several sub centimeter spots, but compared to what it was in August of 2023, the scan on Dec 18, 2024, it looks great. Prayers for answers you need.

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That’s great news. I also have multiple tumors on my liver..I had my first treatment of Lutathera 2 weeks ago…

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hrvy | @hrvy | Dec 21, 2024

I was tested for histotripsy by Dr Silk at NYU Langone for my 3mm liver tumor that appeared after whipple april 2023. It was too small for him to see but he had done about 100 histotripsy procedures for liver tumors . NYU Langone now have a test going on to use it for Kidneys. Apparently it can work to eliminate tumors in any soft organ but the FDA has only approved the procedure for the liver

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1 reply
ricki8 | @ricki8 | Dec 22, 2024
In reply to @kim1965 "The last info I saw was for now only 4 or less tumors can be treated..." + (show)
@kim1965

The last info I saw was for now only 4 or less tumors can be treated in a liver. For now it is very expensive, there are trials going on to address more than 4 tumors at a time. We looked at it but our medical team at Froedert Hospital in Milwaukee felt it was too new procedure in our case. There is a good bit of info online about it to look at if you want to learn more.

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In May of 2024 I had 5 tumors worked on (in my liver) (I was told that I was 3rd in the world to have this done. It was by Dr. Ong out of Swedish Hosp. in Seattle. It worked somewhat, but I still need to continue my other treatments. They were hoping for the Abscopal effect, but that is rare.

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ricki8 | @ricki8 | Dec 22, 2024
In reply to @quinnie2023 "Where are the trials for more than 4 tumors at a time?" + (show)
@quinnie2023

Where are the trials for more than 4 tumors at a time?

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They prefer to work on smaller-sized tumors and, although I had 5 done, that is unusual. As this is so new, they are discovering more about Histotripsy as they go along. Mine was in the liver and they are hoping to be able to work on more organs.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 27, 2024

Related discussions on Mayo Clinic Connect:
- Anyone heard about Histotripsy for liver NETs?
https://connect.mayoclinic.org/discussion/histotripsy/
- Has anyone out there tried Histotripsy for tumors in the liver?
https://connect.mayoclinic.org/discussion/histotripsy-1/

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 28, 2024
In reply to @glynkoko "Fascinating. I’m still awaiting my path report on a GI NET; this is promising news." + (show)
@glynkoko

Fascinating. I’m still awaiting my path report on a GI NET; this is promising news.

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@glynkoko, any update on your pathology report? How are you doing?

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1 reply
ricki8 | @ricki8 | Dec 29, 2024
In reply to @colleenyoung "Related discussions on Mayo Clinic Connect: - Anyone heard about Histotripsy for liver NETs? https://connect.mayoclinic.org/discussion/histotripsy/ -..." + (show)
@colleenyoung

Related discussions on Mayo Clinic Connect:
- Anyone heard about Histotripsy for liver NETs?
https://connect.mayoclinic.org/discussion/histotripsy/
- Has anyone out there tried Histotripsy for tumors in the liver?
https://connect.mayoclinic.org/discussion/histotripsy-1/

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Please read my comments and experience on Histotripsy (of the liver). 2 articles above you.

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glynkoko | @glynkoko | Dec 29, 2024
In reply to @colleenyoung "@glynkoko, any update on your pathology report? How are you doing?" + (show)
@colleenyoung

@glynkoko, any update on your pathology report? How are you doing?

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Hi Colleen — good news and slightly less good news. My primary GI NET and 5/21 positive lymph nodes were grade 1 with a ki-67< 3%. However I had a “distant” micro met that was encapsulated in my umbilical hernia which puts me at Stage IV. My recovery is going well and I feel much better than I did before surgery. I have an oncology appt in a couple of weeks and I’m hoping to find a preventative somatostatin trial that can delay the onset of further mets. I’d welcome any advice!

Thanks

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Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 31, 2024
In reply to @hrvy "I was tested for histotripsy by Dr Silk at NYU Langone for my 3mm liver tumor..." + (show)
@hrvy

I was tested for histotripsy by Dr Silk at NYU Langone for my 3mm liver tumor that appeared after whipple april 2023. It was too small for him to see but he had done about 100 histotripsy procedures for liver tumors . NYU Langone now have a test going on to use it for Kidneys. Apparently it can work to eliminate tumors in any soft organ but the FDA has only approved the procedure for the liver

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@hrvy, how are you doing?

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