What date are you in? @ @celia16 is correct depending on the state your in there are services. My son is 19 he had two heart transplants at 2 and 7. The last heart transplant caused three strokes and he now has vascular dementia or neuro cognitive disorder, with behavioral conditions. He is amazing and we just got him reevaluated to see if it’s getting worse. I have been his only caregiver for 19 years. It is hard but you are not alone, my son prefers not having in home care but the do offer it ask your primary of the patient that you need a little help or a break every now and then they can assist you in the right direction, also there are tons of programs that help they just won’t tell you about them so be your own advocate and look up programs to get support. Hugs to you caregivers are a different breed. My husband is a medic and it allows me to stay home with him but now that he is 18 we get government assistance before we did not have help and it was hard going of our income I suggest setting up a trust for financial stuff. ❤️