Connect
← Return to Tarlov Cyst on the spine: Any advice?
Discussion
Tarlov Cyst on the spine: Any advice?
Spine Health | Last Active: Jan 4 11:26pm | Replies (188)Comment receiving replies
I too was recently diagnosed with a large assist in the sacral area. After another neurosurgeon and multiple pain. Doctors missed it for years. I have multiple autoimmune issues, including interstitial cystitis which I now think was a misdiagnosis because the cyst can cause bladder pain. I even have an interim device to help with that pain. But nothing touches the chronic pain that I am experiencing with this cyst, especially at night, throbbing, no asleep. I’ve taken ibuprofen, I’ve rubbed CBD oil 1200 mg, I’ve done lidocaine patches, I’ve done muscle relaxers, I’ve done sleeping AIDS from a doctor, Nothing is helping, and I am so desperate for some relief. I’m very happy to find this for him and speak with others who have also been diagnosed and what you are doing.
Replies to "I too was recently diagnosed with a large assist in the sacral area. After another neurosurgeon..."
Connect
Hello,
I had an extensive workup and after several orthos who did not know the cause for my sudden onset of pain I was finally diagnosed with several Tarlov cyst in my sacral area. My images were sent to Dr. Feigenbaum , a neurosurgeon who specializes in trading Tarlov cyst ,in Dallas, Texas who recommended surgery. He and a doctor in California are the only two that really have extensive experience in treating these and it takes several months to get on his schedule. I have researched the techniques and read many firsthand accounts from a “Tarlov cyst support group on Facebook”. The procedure is very scary and a very long recovery up to two years. Some people say it gives them their life back while others are made worse. My pain has decreased significantly with time as I have been dealing with this for about six years and I have more good days than bad so I have elected not to have surgery as long as I am somewhat functional.