← Return to Cancer-related distress

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@isadora2021

Very interesting - thank you for sharing. I have incurable stage 4 appendix cancer. Diagnosed in 2021 and after aggressive treatment I’ve been NED since mid 2022. I approached my diagnosis and treatment with a head in the sand strategy.

Made peace with the possibility of dying, got a great medical team, did what they told me to do, tried to carry on my life as normally as possible especially working full time from home adjusting for and managing side effects. My mental health was really good, despite everything. I had so much focus and purpose.

BUT it’s been a real struggle since becoming NED and “waiting” for the inevitable recurrence. I chose to retire from my corporate job in mid 2023 to enjoy life and spend more time with my family. I have no regrets whatsoever doing so but it has taken away one of my crutches and forced me to build better coping mechanisms. I am also surveillance scanned/blood tested every 4 months which has its own stress but also gives peace of mind. A new way of living.

This is a very useful article and I hope others add their experiences.

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Replies to "Very interesting - thank you for sharing. I have incurable stage 4 appendix cancer. Diagnosed in..."

I should add: 18 years earlier I lost my mother to small cell lung cancer within 30 days of diagnosis. From flu like symptoms to gone. I learnt then the very important lesson of making the most of each day and living in the present - not stressing about what’s gone before or what might lie ahead. My sister was a nurse on a cancer ward and was so right to get us into the mindset of not wasting time in the expectation there was heaps to unfold over the horizon. An extremely valuable lesson for then, and for now.