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@sharonsturdivan

UPDATE: Still have not had any addition treatment! Was supposed to begin treatment with new doctor on Dec. 19th, however appt was canceled. It seems that the last 2 centers never got a PDL-1 test done, which I am being told is a requirement of Medicare before immunotherapy treatment. Sure hope the center that did do a round in Oct. won't be sending me a huge bill ! Expessially since it was not an approved combo drug for stage 2B.
I have since tapered off the prednisone but now I have developed shortness of breath. Scared that it will mean that the surgeon will refuse to do any surgery at all due to breathing, and that the mass has not moved away from the ribs which was the reason for the pre-surgery treatments in the first place. I'm beginning to get angry at myself. Thinking I should have just done the surgery in Sept, even though there was a good chance of an open and not robotics. If I had, I should have been healed up by now. As it is, I may not be able to do surgery at all. Dang I am scared to death.

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Replies to "UPDATE: Still have not had any addition treatment! Was supposed to begin treatment with new doctor..."

Sharon, @sharonsturdivan, We can't look back at decisions that we made in the past. With the information that you had, you made the decision that was right for you at the time. It won't fix anything to regret that decision now. Try to continue to look forward.
The PD-L1 test is generally done before immunotherapy is administered. It can be an indicator of how effective the immunotherapy might be (in most lung cancers). With your increased or on-going symptoms, is you doctor concerned about the wait? Did they give you an idea of how long the PDL-1 test will take to come back?