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MALS after surgery
Hi! I am looking for other people that have been diagnosed with MALS (Median Arcuate Ligament Syndrome) and those who have received surgery for it—or doctors who know about it!
I got surgery on October 28th of this year and I'm still having symptoms such as stomach pain and nausea. I no longer struggle with breathing after eating, so I know the surgery has done SOMETHING but I'm honestly discouraged. Has this happened to anyone else? Does it take awhile after surgery to notice results? Every post I've seen about it, people say they have immediate pain relief.
I'm not sure what to do now. I'm hoping that my body is still healing, but it's been almost two months and everything is the same.
I'm just so tired of fighting 🙁
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So sorry youre going through all of this!!! I have mals. And all of the crappy symptoms thst go with it. I have not had surgery yet. A great resource thats out there is a site called MALS pals on facebook. Many people from all over have had surgeries. Both robotic and laperoscopy. Post this on that site and youll hear from so many mals patients. Including me. Very supportive group. Good luck to you. It sill grt better. Hang in there. Keep fighting. 🙏🏻😊
@xalyrose
After my MALS surgery I had a a few months without symptoms, but they returned.
The surgery had removed the ligament’s pressure on the celiac artery but the ligament had formed a permanent indentation on the artery- less blood flow. They placed a stent to keep it open- all symptoms gone.
At some point you should discuss your misery with the surgeon.
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1 ReactionI feel the sameway. Four weeks out of open surgery and still dealing with nausea, stomach upset, constipation and diarrhea. No desire to eat.
im sooo sorry! hopefully, in your case, it's just the scar tissue and everything still healing. it feels so hopeless honestly (at least for me) because i waited so long for this diagnosis and surgery and nothing changed. i guess i got my hopes up too much. please keep me updated! xxx
interesting! i discussed my pain with my surgeon last month and she said there is nothing else she can do for me, so she referred me back to my gastro. BUT she never did a follow up ultrasound to see if the blood flow returned to normal . . . so maybe there's something wrong? i ended up having my gastro schedule a doppler ultrasound for January 10th so we'll see how everything is.
how did you find out that the ligament formed an indentation? was it through a doppler ultrasound or something else?
oh wow i had no idea such a thing existed! thank you so so much!!
im so sorry that you have to suffer with this too. MALS really sucks 🙁 are you planning on having surgery??
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1 ReactionThankyou. I’m going for a second opinion at vcu. My first surgeon from uva only does open surgery and only if celiac plexus block helps your pain. Cpb did nothing for me unfortunately. But many surgeons do the surgery with or without relief from the block. Keep fighting for yourself. Get those tests. Make the drs hear you!!!
@xalyrose
I believe it was visible when I had a follow up CT angio when I complained of pain returning after 6 months.
I got a stent placed then and another one 7 years later when pain returned. I’m fine now even though the last ultrasound showed it 50% open. The vascular surgeon says he can keep replacing them!