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@tmckinney5

2019 I had a Thyroidectomy d/t Graves Disease. Afterwards I kept breaking out in hives and feeling horrible for years. The brain fog, muscle/joint pain, nausea, anxiety, along with my bodies inability to stabilize my TSH levels, was making me lose my mind. I was sent to Immunologist without any answers, just more meds. I finally went back to my Endocrinologist and she realized I was allergic to the binders in the pill form of levothyroxine. Things have improved since starting me on Tirosint but I still am having trouble with random hives, my ears still turn bright red/hot feeling, and muscle pain. It’s worse at night in bed and I struggle turning side to side without pain that feels like I have worked out for 10 hours straight. The severity does come and go. It’s so weird. I feel like I can’t take anything without waking up with hives or having a reaction. It’s so hard to pinpoint triggers. At one point through all this I just wanted to be done because the doctors were horrible. I lost myself and who I was in the depression of it all until my endocrinologist gave me hope and listened to me. I wish I could find answers as well. She recommended me to go to the Mayo Clinic but I am tired of let downs and no answers.

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Replies to "2019 I had a Thyroidectomy d/t Graves Disease. Afterwards I kept breaking out in hives and..."

Go to Mayo!! I think you’ll be very glad you did…

I have had some back pain since they took me off armor thyroid. My throat gets sore in the area of my remaining half thyroid and I do sleep a lot. Something is off here.

@tmckinney5, having unresolved medical issues is so tiring. I can understand your despondency and am so glad that your endocrinologist gave you hope.

If you would like to get a second opinion at Mayo Clinic, your physician can make the referral or you can self refer. Here's where to get started: http://mayocl.in/1mtmR63