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Patient with Adhesive Arachnoiditis in need of help

Spine Health | Last Active: Jan 1 2:23pm | Replies (7)

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@archie2

Re AA— don’t Look for trouble when there isn’t any. The human body is often generally the same and specifically different. I did an autopsy on a 56 year old man whose insides were reversed— heart on the right, liver on the left, etc. He died from heart disease as I recall, but the reversal was noted in the report.
In your case, do you have symptoms that would lead a diagnostician to conclude Adhesive Arachnoiditis? For a clue to answering this, please read through the posts that refer to symptoms…. Good luck. Archie

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Replies to "Re AA— don’t Look for trouble when there isn’t any. The human body is often generally..."

@archie2 I do have some similar hospital experience as a recipient of an American Cancer Society fellowship, but I don't want to make others uncomfortable with details from that experience, and I worked in university biological research for a neuroanatomist. I am also a surgical patient for spine and ankle fracture fixation. I do recognize that sometimes adverse reactions may result from medical procedures, and I have had to be an advocate for myself to use knowledge from my past reactions in conversations with my providers. I do realize mistakes are made that may cause adverse or permanent effects. I have had some inflammatory reactions from an injection and foreign materials in surgical and dental hardware. In sleuthing out possibilities and commonalities, I've been able to draw a likely conclusion. Because of my science research background, I've also known how to look for published journals, and with my spine issue, I actually found my correct diagnosis that was missed by 5 spine surgeons. I was the patient that was dismissed because they didn't understand my symptoms, until I got to Mayo and included the found medical paper in the conversation. Some of my physical issues are from injuries, scar tissue or fascial adhesions, and I have worked extensively with my physical therapist doing myofascial release. It does help a lot of issues by getting the fascia and muscles to glide again and move better and helps to get the body back into a better alignment. That can take pressure off of nerves and muscles. It may not help everyone, but it also allows better fluid circulation in the tissues. When fascia gets stuck and dehydrated, the body doesn't clear waste products well. MFR work has made a profound difference in my life. I do try to help others understand more about what they may be experiencing if I have some knowledge that relates.