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Cachetic - wasting away disease

Lung Cancer | Last Active: 3 days ago | Replies (14)

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@denise96

The palliative people never called. I finally called them and she told me that they had no record of a phone visit for dec 24. she said we have one scheduled for jan 24. Then she said the appt must have been cancelled. I told her that no one had called us about that. Well, after I hung up with them, I found the card and it definitely said December 24, 2024 at 11:45. I am not impressed with this palliative care team. They don't really ask many questions about his problems or how he is feeling. They take the vitals, don't seem concerned that he only weighs between 105 and 111. They have samples of boost there but never offered him any. I saw a sign in the waiting room saying they had samples so I asked. I did get some after that. They only seem happy to dole out pain meds without really much attention to the patient. But yesterday, Friday, a visiting nurse came to the house. She was very nice and asked many questions on how he was doing. Joe needs to get bloodwork done 3 days before chemo. When I mentioned this to her about having to drive 30 minutes away for just a blood draw (because he has a port) she said that the RN visiting nurses are qualified to do that through the port. Thank God I have a big mouth. So she set it up and we won't have to travel 3o minutes. The oncology nurse never told us that visiting nurses could to this at home. And to answer your question, yes, my Mom and my two brothers along with my sister n law were all here to visit with us. My one brother had dinner with us and the other brother and his wife came later. Poor Joe, he was feeling pretty bad and could not join us at the table. He did not want a thing to eat. but they all went into the living room to talk with him So it turned out to be a nice day after all. I hope yours was happy too.

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Replies to "The palliative people never called. I finally called them and she told me that they had..."

@denise96, Wow, hang on to that visiting nurse. She sounds like an angel. It's unfortunate that everyone hasn't had the time, resources, or general caring nature that we look for when we need it the most.
I'm glad that your family was able to gather and spend some quality time together. I had a couple of pre-holiday celebrations with family, and a quiet day at home on Christmas with my husband and one step-son. It was a much enjoyed, thanks.