← Return to Lobular Breast Cancer: Let's share and support each other

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@marshgirl24

@sharon44r
Like you I had LBC in one breast. For me, the right one and I did the breathing thing. At first my surgeon suggested one week of radiation but the RO decided on 3 wks because lobular is "diffuse." I think that means it can show up anywhere if it comes back. (my interpretation). The medical oncologist said I might not need those meds but I didn't want to take chances so I start at end of week. I think you are right in your assumption that at my age (78) they think you might die of something else first. (My mother was almost 95 when she passed on.) To date, I've been pretty healthy. The radiation was uncomfortable. My facility wasn't up on Mepitel film so I didn't try it. Right now I am one week out from radiation and very itchy in my chest area. My RO called in some triamcimolone yesterday so I hope that helps. I'm a bit frustrated by all the women who tell me their mom/sister/aunt had breast cancer and lumpectomy and are still alive and well. No problem. They don't know if it was ductal. My bet is that it was. I'm trying to get my info/survival rates re: LBC so let's stay in touch!

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Replies to "@sharon44r Like you I had LBC in one breast. For me, the right one and I..."

I had lobular breast cancer in my right breast. It was aggressive. Then they found cancer in my left breast. Not lobular ductal. I had two lumpectomies but I needed chemo before I decided to get a double mastectomy. My decision was based on I would have needed radiation right after chemo. I made the correct decision. I am still here after 22 years. Radiation has so many complications.

How are you doing with radiation. I an 5 weeks post . First 2 weeks after were+the hardest for me.
I’m debating on taking tamoxifen, the side effects scare me.
Hoping you are feeling ok🙏