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Lobular Breast Cancer: Let's share and support each other
Breast Cancer | Last Active: 21 hours ago | Replies (414)Comment receiving replies
I have Lobular Carcina in situ undifferentiated Pleomorphic breast cancer. The word Pleomorphic is the kicker there due to being less than 1% of cancers. It's month 6 after 2 lumpectomies, radiation and daily anastrozole, nothing like a menopause rerun. Anyone else have pleomorphic cancer cells? I'm willing to be part of a study, the prognosis isn't great.
Replies to "I have Lobular Carcina in situ undifferentiated Pleomorphic breast cancer. The word Pleomorphic is the kicker..."
I never heard of that type, I’m going to rest about it.
I wish you the very best of luck! 🙏🏻🙏🏻
Luck to us all!
I had stage 1 pleomorphic lobular breast cancer on the right side 18 months ago. The word “pleomorphic” makes me uneasy, and I would rather have had classic lobular, but I was told that with proper treatment (in my case mastectomy, chemo, and endocrine therapy) my chance of recurrence went down to 10%. Physically I feel great, and when I get worried, I try to focus on the positive, like how odds are in my favor of it NOT coming back. Did you have a high onco score?
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So sorry to hear about your uncommon diagnosis, and hope your treatments work out better than expected for you. The Lobular Breast Cancer Alliance has links to research studies and would be a good place to start.