← Return to What should I do next?

Discussion

What should I do next?

Prostate Cancer | Last Active: 2 days ago | Replies (45)

Comment receiving replies
@gently

newtothegroup, you'll be quite valuable to any clinical trial for metastic prostate cancer. And that value will be passed on to others in time.
The doctor who treated you for the last year should have ordered an MRI a year ago. It would be good to find a new internal medicine physician. You may not want to change urologists, but I suggest you might be better served. Most important now is to research the clinicals. I'm hoping you will get your records and send them out for second opinions on the best trial for you. It may be easier to keep your present doctor. And sometimes that's all we can manage. Somatic testing of the tumor looks at the somatic mutations in the tumor itself. Knowing this can tell you the chemotherapeutic agent most likely to destroy your specific tumor. The testing is done on the biopsy samples already obtained. You only have to request the testing and then wait.
https://www.cancer.gov/research/participate/clinical-trials/disease/prostate-cancer/treatment
Bless your search.

.

Jump to this post


Replies to "newtothegroup, you'll be quite valuable to any clinical trial for metastic prostate cancer. And that value..."

Thank you. When the doctor was talking to me, they said it was a genetic cancer. I asked for my records, so I have the biopsy results, regular blood panel results, and then a summary of the PEt scan. I didn't see anything about genetic in the package that they gave me. I also ordered a CD of the PET scan so I can show a 2ndMD specialist and possibly to the cancer center (with links to MD Anderson ) if I can get an appointment.