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@pammy229

No wheezing or shortness of breath, however I had coughed up blood maybe 4 times in the last 5 years. I finally asked for a CT. The first bronchoscopy was done in Idaho and the biopsy was benign. I decided to go to Mayo Clinic in Jacksonville; they did a second bronchoscopy and learned it was a NET, grade 1. They punched a hole through the middle of it, and the lower lobe of my lung (which had been collapsed without symptoms) inflated again. They took several biopsies and one piece was 1.2 cm. They did not check any lymph nodes at that time.

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Replies to "No wheezing or shortness of breath, however I had coughed up blood maybe 4 times in..."

@pammy229

I appreciate the added information on your recent lung NET diagnosis. I'll invite some other members with lung NETs to join this discussion such as @californiazebra @ce1b and @gmapam

Will the PET scan be done at a Mayo facility?