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Afraid of coming to Mayo, but I need a diagnosis
Visiting Mayo Clinic | Last Active: 22 hours ago | Replies (23)Comment receiving replies
@babyblues262, you and your local cardiologist have made a good first step to helping your get answers by requesting an appointment at Mayo Clinic. I've moved your question to the Visiting Mayo Clinic support group where you'll meet many who can share their experiences.
@doesitcomeinglitter @karukgirl @janet23 @jlharsh @danab can share their experiences with cardiology at Mayo Clinic.
@babyblues262, you're not alone. This is a good place to ask questions to help calm the anxiety. Which Mayo Clinic location are you considering? Rochester, MN, Jacksonville, FL or Phoenix, AZ?
Replies to "@babyblues262, you and your local cardiologist have made a good first step to helping your get..."
@babyblues262 You are not alone. I just read through initial responses to your post full of such compassion, insight and wonderful guidance. A win! I see @colleenyoung included me and I am glad to help where I can.
I am a Rochester Mayo cardiology patient. It was a long tough time getting to that point and I can honestly tell you I do know the battle is real, I feel your pain. I have been at a place that taught me there are worse things than dying. You can do this! I am sorry you are not getting the support you need. I am here to help when and how I can as you continue to do the next thing in front of you.
Once at Mayo I was told they understood what was happening, weren’t sure what to do about it, but first it would be about protecting my heart. From there we have moved on addressing one symptom at a time. I will tell you it has been the most horrific and fascinating experiences of my life. I will also say that I regularly report to them I am feeling incrementally better.
I am here, willing to share anything from my experience that may help.
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@colleenyoung I would be coming to Rochester. I am 4 hours from there. I have spent most of the evening in tears because I am terrified of hearing that I have something terminal. My poor husband and my kids have just watched me sob. I beyond scared. I'm also a cardiology nurse and have worked in a cath lab, so I know all the scary things that can happen. I'm not ready to die yet. Did I say I was scared? Because I am terrified.