← Return to Pros and cons of endocrine therapy

Discussion

Pros and cons of endocrine therapy

Breast Cancer | Last Active: 4 days ago | Replies (16)

Comment receiving replies
@windyshores

@kbradtke back in 2015 I was told I had a legal right to symmetry. My oncologist wanted me to have one mastectomy first to see how I handled it due to lupus and heart etc. I had the second one a couple of months later. They found atypical hyperplasia (precancer) so I was glad I did it. That breast was full of cysts! I like being flat to be honest. I would not have liked having on breast. I don't wear prostheses and clothes actually fit me better than before.

My endocrinologist at the time did not want me on Reclast but my oncologist wanted me on bone meds. The endo won out. There was concern about aggravating my afib. After cancer treatment I have done two years Tymlos which made my bones better than before letrozole. Then 4 months Evenity (most do a year, I kind of created my own protocol).

Now I am on Reclast but at a low dose due to kidneys and afib. I did 1 mg in June and 1 mg in Sept. I was due for another 1mg in Dec. but asked my endo to do a bone marker test called a CTX which showed my bone turnover rate was low. I asked my endo if I could skip the Reclast for Dec. and he agreed. I was told by the infusion nurse that a 2mg dose is not uncommon (usual is 5mg). So if the 5mg does not work for you, in terms of side effects, there are things you can do. I feel I am a little protected from bone metastasis but a full dose would be better in that regard.

If you do a Reclast infusion, hydrate day before, day of, day after (you can even ask for IV hydration). Ask for an hour long infusion, not 15 minutes. Use tylenol. I have read that 40% of women have a flu-like reaction the first time but not with second or later doses. I had a fever for 5 days, then fine, no big deal.

Jump to this post


Replies to "@kbradtke back in 2015 I was told I had a legal right to symmetry. My oncologist..."

Thank you again for all your help. I’m waiting for a coordinator to call me back from Dana Farber so I can make appointment with Dr Metzger. And the tips on reclast hugely helpful!! I will talk with docs about that. Btw, a friend who does the reclast also takes 3mg boron daily. She said she read a paper that said boron with the reclast helped reverse osteoporosis. I need to see if I can find the paper!

My cancer is triple positive but may I ask you for advice. I was recently dx with osteoporosis most like due to anastrazole. I am also on kadcycla and zoladex because didn’t have complete response. Yes, I’m afraid of recurrence. There’s not much to do. I did fly to MD Anderson for second option when I found out my tumor didn’t respond to chemo. They agreed with my current treatment.

My onc would like to start me on zometa for osteoporosis. Would you recommend me seeing an endocrinologist to ensure it’s the best treatment for me.

Thank you,
UN