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Any one with Neuroendocrine tumors getting the shot once a month?
Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (168)Comment receiving replies
I have been receiving the Octreotide injections (Sandostatin, and now lanreotide) for 11 years, every 28 days. The only side effects that I have noticed is that after my first shot 11 years ago, my blood sugar went up and I am now diabetic and deal with that on a daily basis. Other than that, I do not know of any other side effects. My liver and mesentary tumors have remained stable through these 11 years.
Replies to "I have been receiving the Octreotide injections (Sandostatin, and now lanreotide) for 11 years, every 28..."
What was your diagnosis when you first found out, if you don’t mind me asking? Stage?, grade?, etc… my husband has just been diagnosed with metastatic well differentiated grade 1 neuroendocrine neoplasm
If you don't mid me asking, What was your grade and stage 11 years ago? My husband has just been diagnosed with grade 1/2 stage 4 with liver metastases and Im very scared. He will get the shot every month from now on and hope for no growth.
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I had the same experience with blood sugar rising..